Patient Advocacy

Pura Vida hosts patient campaigns!

WE ADVOCATE FOR YOU!

HOW WE ADVOCATE

Pura Vida assists patients and their families in organizing and conducting marrow donor recruitment campaigns in the patient’s ethnic community. Patients can share their story and their need to find a marrow donor match through Pura Vida social media platforms (@porpuravida) and media contacts.

HOW TO START A PATIENT CAMPAIGN

Pura Vida patient campaigns involve patient advocacy in order to increase the odds of finding a lifesaving marrow match. Contact vlases@a3mhope.org to set up a meeting to start a personalized patient campaign.

Patient campaigns involve:

Setting up a meeting

Signing a (BTM) consent form (media release)

Creating a personalized Facebook or Instagram page

Creating a personalized promo code and text to join code

Creating personalized flyers and promotional materials

HOW YOU CAN BE AN ADVOCATE

Pura Vida encourages EVERYONE to be an advocate!

Being an advocate means publicly supporting or representing patients and encouraging

EVERYONE to be a part of the cure by registering to be a potential bone marrow/stem cell donor.

The best advocate is someone who follows @porpuravida on Instagram and who has registered with the Be The Match.

WHY YOU SHOULD BE AN ADVOCATE

You have the power to help save lives. Patients in need of a transplant, donors, and their families and friends have recruited many thousands of members to the Be The Match Registry! The cure for blood cancer is in the hands of ordinary people. One simple action can be the difference that gives a patient hope for the future.

 

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