Patient Success Stories

Jonny

4 year-old Columbian + Caucasian

Acute Myeloid Leukemia (AML)

Jonny had a hard battle with leukemia. He was diagnosed before his 2nd birthday. He was diagnosed with mixed lineage leukemia, which put him in high risk for treatment. He underwent Car-T cell infusion therapy, and eventually had a cord blood transplant. Unfortunately, the cord blood transplant did not get rid of the leukemia. Now, siblings only have a 25% chance of matching or being a full match. Jonny’s brother was a partial match, but with the wonderful doctors at UCSF they were able to make magic. Jonny’s 8 year old brother donated his stem cells, and now Jonny is 159 days post transplant.

Desmond

7 year-old Salvadorian + Mexican

Diagnosed with High Risk Acute Lymphocytic Leukemia (ALL)

Desmond was diagnosed with ALL. He is a mixed Latino with no match within his family. He has shown strength throughout his journey. He underwent the Car-T cell infusion in early 2019, and this has helped put his cancer into remission. Now that he is in remission, he is ready for a transplant. The doctors have found him a match and will receive his transplant soon.

Update: Des had a second transplant in August 2019 flown in from Europe.

2020 update: This year, he relapsed with Leukemia, but is fighting like the strong warrior he is. We encourage blood and platelet donations for Children’s Hospital Los Angeles to help him and all children in need of blood products.

Alexis

22-year-old Mexican

Diagnosed with T-Cell Acute Lymphoblastic Leukemia

A SoCal native and recent graduate at Syracuse University had her whole life planned. In May 2019, that all came to a halt when she was diagnosed with leukemia. None of the treatments given to her was working, so her doctors have recommended a blood stem cell transplant for a cure. In 2020, Alexis won her battle with leukemia through a bone marrow transplant.

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