Patient Success Stories

Jonny

4 year-old Columbian + Caucasian

Acute Myeloid Leukemia (AML)

Jonny had a hard battle with leukemia. He was diagnosed before his 2nd birthday. He was diagnosed with mixed lineage leukemia, which put him in high risk for treatment. He underwent Car-T cell infusion therapy, and eventually had a cord blood transplant. Unfortunately, the cord blood transplant did not get rid of the leukemia. Now, siblings only have a 25% chance of matching or being a full match. Jonny’s brother was a partial match, but with the wonderful doctors at UCSF they were able to make magic. Jonny’s 8 year old brother donated his stem cells, and now Jonny is 159 days post transplant.

Desmond

7 year-old Salvadorian + Mexican

Diagnosed with High Risk Acute Lymphocytic Leukemia (ALL)

Desmond was diagnosed with ALL. He is a mixed Latino with no match within his family. He has shown strength throughout his journey. He underwent the Car-T cell infusion earlier this year, and this has helped put his cancer into remission. Now that he is in remission, he is ready for a transplant. The doctors have found him a match and will receive his transplant soon. ~~Des had a second transplant in August 2019 flown in from Europe. ~~

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